Sustainable Caregiver™
13 week workshop
A Virtual Wellness Experience for caregivers
The Sustainable Caregiver Workshop is an online wellness experience guided by self-care experts specializing in rare disease caregiving. You will gain experience, education and empowerment to reconnect you with the person you were before rare disease touched your life. Many of our participants tell us they feel “invisible” before coming to our workshop experience and they leave feeling empowered and excited.
We see you. We developed this virtual workshop to give you tools, experiences and healing within a supportive community of caregivers and your support network who understand you.
Event Details
Dates: April 2nd - June 25th, 2024
Tuesdays 10am-11am Pacific
Location: Virtual Event
Information: Weekly gatherings include: yoga, meditation, equine wisdom, physical wellness, and intimate group work with other caregivers and support network.
You will be personally guided through the Sustainable Caregiver™ Workshop by Padma Gordon
Every participant will receive a package of exclusive self care gifts
The workshop includes:
Strategies for Embracing Change
Tips, Tools & Rituals for Self Care
Caregiver-to-Caregiver Bonding
Sensory Self Care Experiences
At Raregivers™, we believe in uplifting the family by caring for the caregivers. Every caregiver should have access to the training needed to help sustain their own emotional, social, financial and physical health throughout the life-altering journey with their loved one’s disease.
Register below
Registration Form
What to Expect
Launch Day
We are so excited to have you join! Meet Padma Gordon and other caregivers. Let’s get to know each other and join in a grounding ritual.
Workshop with Padma Gordon
This workshop was developed to help you navigate your unique journey . This journey is so complex and extraordinary that it touches every aspect of your lives. Caregivers and their support network face a chaotic and unknown environment and often lack sufficient information, treatment and regular support. Our workshop gives you tools, exercises and self-care tips to prevent burnout, maintain sanity and set up a sustainable structure for your whole family to thrive.
Sensory Self Care Experiences
Self care experiences and gifts related to Taste, Touch, Smell, Sound & Sight. These experiences focus on decreasing stress and increasing calm, utilizing NIH scientifically recognized techniques around Mindfulness Based Stress Reduction. Self care experts will join us to offer education and techniques for those supporting people with narcolepsy to manage stress, primarily through mindfulness-based practices and self care products.
Graduation Celebration
We want to celebrate your great accomplishments. Let’s recap on our experiences and stay in touch!
“How am I feeling right now? Happy. Sharing stories, feelings, thoughts, concerns, fears, solutions, challenges and hugs brings a degree of joy, solace and peace to me that I have never felt before.”
- Phyllis (Rare Mom from November 2019 Retreat)
“It was so nice to not talk about disease. I’m tired of faking about my feelings, tired of being positive all the time. That is exhausting - to have to carry everyone else’s worries and feelings.”
— Anika, 2020 Wellness Retreat
“The enormity of my life overwhelms my feelings. Something's got to give. I need to create the space to receive help. This was the first step on retreat...to help me create space so I can receive.”
— Sarah, 2020 Wellness Retreat
