You Deserve M.O.R.E.
(Mothers Of Rare Experience)
A Unique and Sustainable Wellness Experience, Hosted by ANGEL AID
We understand you. We know first hand how much you have given to your child or loved one. We know the toll being a caregiver to a patient with a rare disease can place on your mind and body. We know because we’ve been there too.
M.O.R.E. is an online wellness experience guided by professional wellness gurus, clinicians and self-care experts specializing in working with rare families. You will gain experience, education and empowerment to reconnect you with the women you were before you became a Raregivers. Many of our mothers tell us they felt “invisible” before coming to the retreat and after they left empowered, excited and most of all connected to a community of women who truly listen without judgement
Event Details
Date:
TBD
Location:
Virtual Event
Information:
Weekly gatherings include: yoga, meditation, equine wisdom, physical wellness, and intimate group work with other Rare Mothers.
You will be personally guided through The Sustainable Mom Workshop by Dr. Laura Riordan
Every participant will receive a package of exclusive self care gifts
Laura Riordan, PhD is a holistic life coach with over 20 years of experience in the mind and body wellness industry. She is the author of The Sustainable Caregiver Workshop, which will guide our Mothers Of Rare Experience. The workshop includes:
Strategies for Embracing Change
Tips, Tools & Rituals for Self Care
Mother-to-Mother Bonding
Sensory Self Care Experiences
Mothers take care of their kids. We take care of the mothers.
At ANGEL AID, we believe in uplifting the family by caring for the caregivers - particularly mothers. Every woman should have access to the training needed to help sustain their own emotional, social, financial and physical health throughout the life-altering journey with their child's rare disease.
We strive to be inclusive. If cost is a barrier to your attendance, please apply for a sponsorship.
If you are interested in participating and/or receiving sponsorship for the next retreat, please fill out the form below. NOTE: Purchasing participation will hold your spot.
Please fill out the M.O.R.E. Interest form to receive information about future retreats!
Session Details
Launch Party
We are so excited to have you join! Meet the Rare Moms and Health & Wellness Practitioners. Let’s get to know each other and join in a grounding ritual.
Workshop with Dr. Laura Riordan
This retreat was developed for Rare Moms to help you navigate your unique journey through motherhood. This journey is so complex and extraordinary that it touches every aspect of your lives. Rare moms face a chaotic and unknown environment and often lack sufficient information, treatment and regular support. The Sustainable Mom workshop gives you tools, exercises and self-care tips to prevent burnout, maintain sanity and set up a sustainable structure for your whole family to thrive. (Workshops recording will be available)
Raregivers™ Emotional Journey Map
We are partnering with Raregivers.global to provide Rare Mothers with training that encourages emotional wellbeing through mental health education and exercises alongside other caregivers who understand. Mental and emotional health and wellness starts with grounding this traumatic experience in the six-stages of hope and grief and being witnessed in your emotional journey.
Sensory Self Care Experiences
Self care experiences and gifts related to Taste, Touch, Smell, Sound & Sight. These experiences focus on decreasing stress and increasing calm, utilizing NIH scientifically recognized techniques around Mindfulness Based Stress Reduction. Self care experts will join us to offer education and techniques for Rare Moms to manage stress, primarily through mindfulness-based practices and self care products.
Social Events
During this pandemic we can not be together in person, but we can still hangout and get to know each other, after all, that is what we all want most - to have friends we can talk to freely, without judgement, and who understand.
Graduation Celebration
We want to celebrate your great accomplishments. Let’s recap on our experiences and stay in touch!
“How am I feeling right now? Happy. These mothers - Rare Mothers - sharing their stories, feelings, thoughts, concerns, fears, solutions, challenges and hugs brings a degree of joy, solace and peace to me that I have never felt before.” - Phyllis (Rare Mother-MPS II)
“I am a mother. I am so happy I was able to connect with other mothers. That I could leave the rare disease at the door and share my needs.”
— Monica (Rare Mother from SynGAP community)
“It was so nice to not talk about rare disease. I’m tired of faking about my feelings, tired of being positive all the time. That is exhausting - to have to carry everyone else’s worries and feelings.”
— Anika (Rare Mother from Infantile Pompe Disease community)
“The enormity of my life overwhelms my feelings. Something's got to give. I need to create the space to receive help. This was the first step on retreat...to help me create space so I can receive.”
— Sarah (Rare Mother from BPAN community)
Invest In Yourself:
$799 includes access to: The Sustainable Mom Workshops, self care package, weekly wellness and social events, and the online workshop community on Mighty Networks. If price is a limitation, please feel free to apply for a sponsorship.
