Rare Caregivers Coalition — ANGEL AID

Rare Caregivers Coalition

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Lara Bloom
Founder & CEO, Ehlers Danlos Society

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Gina Glass
Founder, Executive Director, DreamSickle Kids

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Bridgett Husk
Senior Manager, Patient Advocacy, Horizon Therapeutics

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Julia Jenkins
Executive Director, EveryLife Foundation

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Taylor Kane
Founder & Executive Director, Remember the Girls

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Luisa Leal
Founder & CEO, The Akari Foundation

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Stephanie Marshall
Director of Patient Advocacy, The Assistance Fund

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Jordan McSherry
Associate Director, Patient Centric Drug Development, IONIS

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Gail Moore
Executive Director, EveryLife Foundation

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Randy Phelps, Ph.D.
Chief Clinical & Science Officer, WeBe Life Inc.

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Kris Pierce
Rare Epilepsy Lead, Epilepsy Foundation of Australia

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Harsha Rajasimha, MS, Ph.D.
Founder & Chairman, IndoUSRare
Founder & CEO, Jeeva Informatics

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Paige Rivard
CEO, Prader-Willi Syndrome Association

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Elizabeth Saucedo
Founder, FDDN.org

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Scott Williams
Head, Global Public Affairs, Sanofi

For more information, contact coalition@angelaidcares.org