DOWNLOADS

Knowing of the Diagnosis

Fertility and Genetic Testing

Resources and Selfcare

Telling Others

Emotion and Grief

Insights and Wisdom

 "The Voice of the Rare Carrier workshop was amazing. Our communities are built upon connection, meeting people in real-life face to face and getting to know them on a deeper level. That is what this world is all about and this workshop gave us a great platform to do this. I made some genuine friends and connections here that allowed me to share my experiences, my journey, my successes and my struggles, with them. No judgment, no fear, no guilt…just an open space and opportunity. I loved every bit of this workshop and hope to be included in more in the future. It is all about learning from each other, advocating for yourself, supporting everyone and really connecting. Isn’t that how life is supposed to be? It really was the perfect amount of time each week and length of program."