Meet the 2022-2023 Board of Directors
We are seeking new board members!
Stacey Bailey
Director of Communications | The Kavli Foundation
Cristol Barrett O’Loughlin
Founder & CEO | ANGEL AID CARES
Phyllis Barrett Reusche
Writer & Rare Mother | The Bear Facts
Lisa Burke
Creator & Presenter | RTL Today
David Gaian
Co-Founder | Impact Energy LLC
Alexandra Howson
Principle/Writer/Researcher | Thistle Editorial
Carol Jacobs
Founder - CareGivers Care
Monica Pal
Co-Founder & CEO | The Monarch Mavens
Scott Schliebner
SVP Clinical Development Sciences | TFS HealthScience
Previous Board members
Nicole Boice
Co-Founder, Executive Director | RARE-X
Wendy Horng Brawer
Chief Learning & Innovation Officer | Intune Collective
Maria Picone
Co-Founder/CEO | Trend Community
Debi Struzan
Creative Director | Amazon Studios
Dauray Tannahill
Owner | Wildflower Apothecary
Alison Skrinar
VP Clinical Outcomes/Research/Evaluation | Ultragenyx