Narcolepsy caregiver wellness retreat

A Virtual Wellness Experience for the Narcolepsy Community
Hosted by ANGEL AID

The Narcolepsy Caregiver Wellness Retreat is an online wellness experience guided by professional clinicians and self-care experts specializing in rare disease caregiving. You will gain experience, education and empowerment to reconnect you with the person you were before narcolepsy touched your life. Many of our participants tell us they felt “invisible” before coming to the retreat and after they left empowered and excited. 

We see you. We developed this Virtual Retreat to give you tools, experiences and healing within a supportive community of caregivers and your support network who understand you. 

Event Details

Dates: June 20th - July 29th, 2022

Mondays 5-6pm & 10am-11am PST

Wednesdays 9-10:30am PST

Fridays 5-6 pm PST (Optional)

Location: Virtual Event

Information: Weekly gatherings include: yoga, meditation, equine wisdom, physical wellness, and intimate group work with other Narcolepsy caregivers and support network.

  • You will be personally guided through the Sustainable Caregiver™ Workshop by Dr. Laura Riordan

  • Every participant will receive a package of exclusive self care gifts 

Laura Riordan, PhD is a holistic life coach with over 20 years of experience in the mind and body wellness industry. She is the author of Sustainable Caregiver™ Workshop, which will guide our Narcolepsy Caregiver Experience. The workshop includes:

  • Strategies for Embracing Change

  • Tips, Tools & Rituals for Self Care

  • Caregiver-to-Caregiver Bonding

  • Sensory Self Care Experiences

At ANGEL AID, we believe in uplifting the family by caring for the caregivers. Every caregiver should have access to the training needed to help sustain their own emotional, social, financial and physical health throughout the life-altering journey with their loved one’s disease.

We strive to be inclusive and invite not only the primary support caregiver, but also extend the invite to your Narcolepsy support network including, but not limited to spouses, partners, boyfriends/girlfriends, siblings, relatives, professional caregiver, etc.

Thanks to our sponsor, Harmony Biosciences, the retreat is provided at no cost for caregivers & their support network in the Narcolepsy Community.

 
 
 

Applications are Closed

Please visit our events page to learn about future opportunities.

What to Expect

 

Launch Party

We are so excited to have you join! Meet people in the Narcolepsy Community and Health & Wellness Practitioners. Let’s get to know each other and join in a grounding ritual.

 

Workshop with Dr. Laura Riordan

This retreat was developed to help you navigate your unique journey . This journey is so complex and extraordinary that it touches every aspect of your lives. People with narcolepsy and their support network face a chaotic and unknown environment and often lack sufficient information, treatment and regular support. Our workshop gives you tools, exercises and self-care tips to prevent burnout, maintain sanity and set up a sustainable structure for your whole family to thrive.

 

Sensory Self Care Experiences

Self care experiences and gifts related to Taste, Touch, Smell, Sound & Sight. These experiences focus on decreasing stress and increasing calm, utilizing NIH scientifically recognized techniques around Mindfulness Based Stress Reduction. Self care experts will join us to offer education and techniques for those supporting people with narcolepsy to manage stress, primarily through mindfulness-based practices and self care products. 

 

Social Events

During this pandemic we can not be together in person, but we can still hangout and get to know each other, after all, that is what we all want most - to have friends we can talk to freely, without judgement, and who understand.

 

Graduation Celebration

We want to celebrate your great accomplishments. Let’s recap on our experiences and stay in touch!

“How am I feeling right now?  Happy.  Sharing stories, feelings, thoughts, concerns, fears, solutions, challenges and hugs brings a degree of joy, solace and peace to me that I have never felt before.”

- Phyllis (Rare Mom from November 2019 Retreat)

 

“It was so nice to not talk about disease.  I’m tired of faking about my feelings, tired of being positive all the time.  That is exhausting - to have to carry everyone else’s worries and feelings.”

— Anika, 2020 Wellness Retreat


“The enormity of my life overwhelms my feelings.  Something's got to give.  I need to create the space to receive help.  This was the first step on retreat...to help me create space so I can receive.”

— Sarah, 2020 Wellness Retreat