Emotion and Grief


There is no one way to feel as a Rare Carrier. There are many emotions surrounding carrier status and the different challenges that come with it. In this session, we discussed a variety of emotional responses, including grief, that arise throughout the carrier experience.

In this session, we discussed how and when various emotions present themselves among Rare Carriers. We touched on grief, guilt, fear, stress, anxiety, freedom, inspiration, and more. We discussed how Rare Carriers deal with the unknown and experience their emotions. Many participants shared that their emotions inspire them to jump into action--raising awareness, helping others, and more.


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“I have learned that I don’t have to hide it [my emotions].

- Jamii Stock