David Ross
patient advocate and rare disease male mental mental health collaborator
David Ross is a patient advocate and rare disease male mental mental health collaborator. David’s activism began in 2017 when he was diagnosed with a rare disease called Cowden Syndrome due to being given a letter from his mother about getting tested before she passed away with the same condition as him.
After a period of coming to terms with this he became committed to raising awareness and supporting others impacted by this condition by helping set up a support group and also applying to join the Pten Foundation International Family Council which looks to helping the rare disease community by raising awareness about Cowden Syndrome.
In 2020 he attended 3 virtual Eurordis rare disease schools and is currently on the Findacure mentoring program. His latest project has been to set up rare disease male mental mental health International zoom calls for patients and caregivers and has set up an online support group on Facebook for males in 2021.
Beginning in January of 2023, Davis will use his expertise to facilitate a Men’s Rare Disease Mental Health Meeting on the last Sunday of each month at 4pm GMT (8am PST). Learn more on our events page.