Loving The Moment As It Is
This week in our Rare Family Dynamics session, the conversation centered around, loving yourself and accepting what is.
We talked about how things that used to be a big deal before you had your Rare child may not seem like such a big deal anymore. When things like bringing your child in for a procedure where they are receiving general anesthesia don't seem so huge, it is as if the Richter scale has changed.
One of our participants had just taken her Rare son in for a procedure that morning. She reflected, ”yes, it was difficult, and it was also relaxing because I had two whole hours to myself. It was relaxing, because I trusted that we had made the right decision.”
Appointments are a lot
The reality is that any therapy appointment can be a lot. It could be triggering to see a younger child crawling around while your child who is a few years older can barely sit up by themselves. These things are hard to see.
As a raregiver, you work hard for your Rare child and you need to let go of control.
Some Resources for YOU
💖 One of them is Kate Bowler’s book, “The Lives We Actually Have: 100 Blessings for Imperfect Days.” ”She also has a podcast called, Everything Happens: For a Reason”.
Living with grief (Resources)
💖 As a, raregiver, you learn to live with day to day grief. Perhaps you can find a way to hug the grief as you wrestle it?
💖 The book Healing After Loss: Daily Meditations For Working Through Grief by Martha Whitmore Hickman comes highly recommended.
💖 Attending the weekly support meetings. Please come as in when you are able. We are here for you.
Coming up this week: End of Life Preparation
On your journey as a raregiver, you will eventually grapple with how to deal with the end of your beloved child’s life. This may involve grieving while still caring for your Rare child. This experience is called anticipatory grief and can last for several years. Receiving compassionate emotional support during this time is essential and finding opportunities to discuss the journey of death and dying with others will lessen the burden. Please join us for a tender-hearted conversation.
You belong here
This group is open to all raregivers regardless of gender or relationship status. Join our amazing community of raregivers who understand you. Come and be seen, heard and truly understood. Let the community hold you. We meet on Tuesdays at 10am PT. Come for all or a portion of the session.
Your presence is a contribution.
Zoom Link: Click Here
May you have a relaxing weekend and we look forward to being with you soon.
Warmly,
Padma
