4: Full-Time Caring


Many raregivers are in paid employment when they start caregiving. Trying to balance caregiving with paid work or employment looks different for everyone. In order to find this balance, some raregivers reduce their working hours, seek work with flexible leave, or stop working altogether. These changes in access to work often reduce income, weaken work-placed ties and friendships, and can affect productivity at work. 


 

“My son's not doing well. He's really angry at the moment. Everybody is trying to do their best. If they really knew how complicated it was it would help. I feel like I'm the only one who can change this and help my son's quality of life. I feel so powerless, helpless.”

- Marlies S., Alexander Mom