Angelaidcares.org is moving to Raregivers.global

Angelaidcares.org is moving to Raregivers.global

Relief for Raregivers™ who need it most

Connect with other Raregivers™, learn the tools of self-care, and be listened to without judgement


 
 

Half of rare patients are children

There are 350 million people worldwide living with a rare disease, more than AIDS and cancer combined.  There are no cures for the 7000+ rare diseases and only 5% have treatments. One third of rare children will not see their 5th Birthday. 

ANGEL AID provides emotional support to families living with rare, chronic and complex diseases.

The reality of daily long-term caregiving is unimaginable.

 
 

Documentary Short-Film:Voice of the rare Mother

Featuring Gabi Conecker

 
“The enormity of my life overwhelms my feelings. Something has got to give. I need to create the space to receive help. This was the first step on retreat...to help me create space so I can receive.”
— Sarah, Rare Mom
 
woman sitting in a circle on the floor holding hands

Wellness & Support

Staying in balance can be challenging for long-term caregivers.  Our supportive small group retreats and workshops are designed to refuel the body and soul - both in-person and online.

Explore Upcoming Workshops

“The things that make us special are also a great burden. It was a relief to set that burden down. I am just so grateful to connect as women and not have to start at the very beginning.”
— Lynn, Rare Mom
white haired woman holding pencil to her face in profile

Calling All Raregivers™!

Global Family Resilience Survey

We have partnered with Indiana University, School of Social Work. ​ Please help us document the social, emotional, financial and physical effects of long-term caregiving with our five minute Rare Mothers Community Needs Assessment. ​ Results are anonymous and will be shared with you! 

Complete Quick Survey

 

ANGEL AID provides connection, relief and inspiration to Raregivers™.

Get to know us on Instagram.

#3 Shifting Responsibilities: As roles change, so does identity—bringing role strain and the need to learn about the disease. Suddenly, you become the expert, the advocate, and often the nurse, all while grappling with resistance to this new
#2 Adjusting to Diagnosis: Managing symptoms, learning about genetics, and navigating the lack of treatment options. Complex care coordination becomes the new normal, bringing with it feelings of overwhelm and fatigue. Yet, many rise to the challeng
#1 Noticing Changes: It starts with a desire for answers, a diagnosis that brings clarity. But then comes the engagement with healthcare systems and bureaucracy, often met with a lack of disease-specific information. The journey is often filled wi
Emotional Health: A Hidden Reality In rare, chronic, and complex disease communities, the emotional well-being of patients, caregivers, and professionals often goes undocumented and unsupported. Since 2019, Raregivers™ has been at the forefro

Belonging for the broken-hearted

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